Jessica Elliot helps her son, Cam, get ready for bed on Wednesday, Feb. 21, 2018 in Winston-Salem, N.C. Cam's nightly routine is involved, his eyes have to be taped shut to protect his vision and he must wear an CPAP machine for his breathing.
Paul Elliot drives his son, Cam, home from school on Thursday, March 1, 2018 in Winston-Salem, N.C.
Cam Elliot, left, plays with his brother Max in their bedroom on Thursday, March 15, 2018 in Winston-Salem, N.C.
Cam Elliot, 7, brushes his teeth before bed on Wednesday, Feb. 21, 2018 in Winston-Salem, N.C.
Cam Elliot waves at a train during a visit to Boston to attend appointments at Boston Children's Hospital on Thursday, March 29, 2018 in Boston, Ma. Cam has to travel to Boston a few times a year to see specialist surgeons and doctors.
Jessica Elliot holds her son, Cam, as Doctor Joseph Upton, Senior Associate in Surgery at Boston Children's Hospital, checks Cam's feet on Thursday, March 29, 2018 in Boston, Ma.
Doctor Joseph Upton, Senior Associate in Surgery at Boston Children's Hospital, holds a mold of typical Apert Syndrome hands next to Cam Elliot's hand during an appointment on Thursday, March 29, 2018 in Boston, Ma.
Cam Elliot rolls around cones he set up to play his favorite game, where he tells people which cone or stop to stand, imitating the carpool procedure at his elementary school on Thursday, March 15, 2018 in Winston-Salem, N.C.
Jessica Elliot dances with her son, Cam, while the pair wait for an appointment at Boston Children's Hospital on Thursday, March 29, 2018 in Boston, Ma.
Cam Elliot, left, and his brother, Max, hang out before Cam left for Boston for multiple appointments at Boston Children's Hospital on Monday, March 26, 2018 in Winston-Salem, N.C.
Cam Elliot sits on a stool during a 3D imaging session at Boston Children's Hospital on Friday, March 30, 2018 in Boston, Ma.
Cam Elliot leaves for a trip to Boston for multiple appointments at Boston Children's Hospital on Monday, March 26, 2018 in Winston-Salem, N.C.
Cam Elliot plays with a measuring tape as Dr. Mark Proctor, Neurosurgeon-in-Chief at Boston Children's Hospital, speaks with Cam's mother, Jessica, on Friday, March 30, 2018 in Boston, Ma.
Cam Elliot, 7, waves goodbye to friends on Thursday, March 1, 2018 in Winston-Salem, N.C.
Cam Elliot plays with a stuffed elephant before bed on Wednesday, Feb. 21, 2018 in Winston-Salem, N.C.
Paul Elliot sits with his son, Cam, on Thursday, August 9, 2018 in Winston-Salem, N.C.